Kade has been resting a lot today. Were thinking that the extra work that his body is doing to process the waste is making him really tired. Which is good, his body has a lot of work to do, and it repairs itself the most while he is resting so sleep away little man. We do have some exciting news. Were are moving rooms tonight. The Hospital staff said that they have a nice quite corner room for Kade if we would like to move. Kade has reached enough patient points to qualify for an upgrade. Membership has it's privileges?
Kade's surgeon happened to find us on our daily wagon ride. He wanted to speak to us about Kade and the plans for the near future. He is happy to see that Kade's bowels are starting to work a little. It will really help him when the stoma is put back together for good. They plan to get rid of his stoma the first part of August with a 5 day recovery period in the Hospital afterwards. We were hoping to get to go home early next week, but that has been pushed back to the later half of the week. Which really only leaves a few days between when we are scheduled to go home the for the first time, and Kade's hopefully final surgery. Which puts us right back to the issue of limited help on the weekend, if we were to need anything. So, Even though we would love to take him home for a few days it's in Kade's best interest to stay. He will remain at Children's until most likely his 1 year birthday or later.
The bummer side is that it will be longer until we can all be at home together. The plus side is that if Kade does well we could go home with a boy that doesn't have a IV line. We might only need the one that feeds him until he can learn how to swallow again. Were thankful that home is still on the horizon and that Kade gets better and stronger each day. He also seems to be packing on a few extra pounds as well, he now weighs 26 lbs, but it looks good on him.
I am very sorry to hear that your stay in the hospital will be longer than you anticipated--I understand too well how dearly you want to go home and just love Kade as part of your family and help him heal. Hang in there, it will come in due time, and what a blessing it will be if he can go home with only a feeding tube. You are all in our thoughts and prayers.
ReplyDeleteKristin Brown
Hi Troy,Allison,Hanna and Kade~ I just wanted to say hello and see how things are going. I'm sorry to hear that Kade has to stay longer but I understand why and hopefully in two or three weeks you will all be home!!! Sounds like you're doing great Mr. Kade and you just rest up little man and get strong so you can get home to play with us all! WE miss you and your in our thoughts and prayers daily!!
ReplyDeleteHang in there Troy and Allison!! I know you were hopeful that Kade would be home for his birthday but hey, we can still throw a bash for your little guy no matter what. I think a wagon party would be great! :) Hope you got some rest this weekend and I'll chat with you all soon. Love Always!!
Laura, Keaton and Makenna xoxo