Hello all,
Kade is resting right now. He has had a busy morning and started getting really fussy around noon today. Which is understandable, he had some PT exercise this morning for about 30 minutes. He did great and seemed happy during the whole time. We are working on the muscles in his neck. He is able to move his head from side to side, but it does make him tired and the motion is a little jerky when he tries to follow us or toys.
He has done a good job on keeping the small amounts fluid down. We will begin to start to give him a little more and see how he adjusts. Right now he is getting around an ounce every other hour. Our end goal will be for him to eat 6-8oz about 4 times a day.
Most all of the medications that he now has to take is oral. We are having to give him something around every 2 hours, and some times it's a few at once. You can tell that some of them he is not very thrilled to take. I suppose they must taste awful. So we have tried to dilute it by putting some of them in his bottle, or by giving him small amounts of meds and then quickly follow up with the bottle.
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