Routine

Sorry for not posting for a while. I have been back to work full time for the past couple of weeks, and we are adjusting to our old routine, which we are so thankful for! Kade is doing exceptionally well with eatting! So well that we have not had to use the feeding tube at all this week. The surgeon said that if we do not use it for 3 weeks, we can take it out! Last week we did have to go back up to Children's to have the surgeon look at the area around the button. Troy and I noticed it was hard and something was almost poking through the skin. Turns out it was a stitch that had come undone, and it was nothing to worry about it would eventually dissolve. The surgeon stated that if we saw something blue poke through the skin we could just trim it...I said that we would just come back for him to do the trimming!! So far nothing has poked through and the area is getting softer.
Hanna was not happy when we pulled into the garage at Children's. The first words out of here mouth were "What are we doing here!?" I explained that they wanted to look at Kade's button and that we were ALL going home together TODAY! She accepted that and we were off. She didn't skip a beat when it came to the elevator, and was all over the Drs and nurses when we stopped by the PICU to visit. Everyone was so excited to see how well Kade was doing, and Dr. Trempher got a snapshot with his iphone.
Kade is doing very well at daycare, and Hanna just loves him to pieces every chance she gets. Kade has taken a couple of steps for us, but still perfers to crawl.
I will try to post weekly, but as the saying goes, no news is good news!
Thanks for checking on us!

October 5

Kade is still doing great with his eating! He struggled with drinking a little, but has overcome his initial reaction to automatically spitting it out. He loves to feed himself, but has also become more accepting of being spoon fed, which really increases our food options! He was eating a lot of peaches, bananas and puffs for a couple days until I was able to feed him regular baby food with a spoon. We are working on decreasing the need for tube feeding during the day, which allow for more freedom to move around.
Speaking of moving around, Kade has taken a couple steps!! He is definitely getting brave, and he has the bumps and bruises to prove it! He has a lot of friends as daycare that are walking, so I hope that helps encourage him.
Kade will start going to daycare 3 full days a week. I am back at work and enjoying getting back to our regular routine. Hanna is really happy to have here brother back at "Hearts" with her. Their classes are outside at the same time, so they get a chance to interact with each other.
We are looking forward to a month without Dr appointments! Our next visits will be in November when we see the surgeon for our followup, and Dr. Russell for Kade's 15 month appointment. Thank you for continuing to check on Kade's progress!