Do to a conflict in schedule, Kade was unable to do the swallow study today. However he will be getting it done at 8:00am tomorrow. One of us will be with him during the procedure and watching the X-ray machine closely. We were really hoping that he would show everyone that he was just joking around and start eating like crazy today, but that was not the case. In fact he kinda went the other way.
Someone from the swallow study stopped by today to just watch Kade try to eat. She is pretty sure that he is in fact having an issue with milk going down the wrong tube. He forcefully pushes the bottle away and gets super mad when we keep trying. Kade really needs to get something in his stomach so after the study he will be getting the feeding tube put back in place. Surgery has said it will be the best thing for him and while were sad to see another tube hooked back up we know it has to be this way. I haven't had the heart to tell Kade yet. I hope he doesn't pull this one out. It will be good to get him all the food he needs from the tube and skip past the problem spot. Were praying that it will give him the strength back to get better and overcome the swallowing issue as well. On the plus side we will no longer have to wake him up to give him his meds, and he doesn't have to taste it anymore either. Trust me his cries to hard to handle when it's med time.
We did have a good day of playing and PT workouts. He was also up a lot this evening so hopefully he will sleep more tonight than previous nights. He is starting to get his voice back and starting to babble more and more. Even his giggle is more like we remember it.
Here's one of his favorite new toys to play with. It's from Mr. and Mrs. soon to be Brian and Anne Ballweg. Hanna will be the flower girl in the wedding on Friday. She has been so excited since they asked her. Now that the day approaches closer she is starting to get a little nervous as well. It's too cute!!
Thanks for keeping up with Kade. He is going to have a lot of hugs to dish out when this is all over.
Subscribe to:
Post Comments (Atom)
I will be thinking of all of you at 8:00 this morning!
ReplyDeleteHopefully everything will go well and we all will be praying for you!!!
Kristy
We've just returned from a trip and I'm glad to hear of Mr. Kade's progress. There might be a few set-backs, but he's come a long way. The video was wonderful to see!! Abby also had a swallow study done at Children's Hospital when she was 2 months old and having difficulty with her bottle. The technology is amazing. Everyone at daycare continues to miss you...keep up the good work and Mr. Kade, please start eating for your Mom & Dad. Kristin, Corey, Nathan & Abby Brown
ReplyDelete