Kade had a long weekend. He has been going through what we are hoping is the last stage of withdrawals. He had his last small dose of methadone yesterday, and the pain killers are only as needed at this point. The good news is that he hasn't had anything but Tylenol since last night. His mood has been very fussy this weekend, but you can't blame him for feeling that way. Surgery has been steadily increasing the amount of formula he gets over the last 4 days. At 12 am today he got to 45ml an hour, which is 1.5 oz an hour. He was unable to keep much down over the night so the turned in down to 40 ml. Surgery has been pushing to get more food in Kade to help stretch his stomach and get him ready to close the stoma. The goal is to get Kade to 60ml an hour.
We are thinking that the withdrawals is why he has trouble keeping food down. He has been such a trooper and he can get over this as well. There was some happy moments today. The whole family got to go outside and have lunch today. Even though Kade can't eat he loved being outside and smiled the whole time. He also enjoyed playing with Hanna, she knows just how to make him laugh.
Hopefully soon Kade will not feel any more effects from the drugs leaving the body and he will be able to eat and keep food down on his own.
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Glad to hear that the happy moments are becoming more plentiful. Hang in there, you have come so far already. I continue to pray for your family and strength for Kade's little body. Keep the faith! Sandy
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