Kade is still having a hard time with the drug withdrawals. He really hates having to take medications orally. He starts to cry each time they get near him with another dose. Calming him down after a dose can be trying for us as well. We were able to get them to cut back on a few of them. This should hopefully allow him to get some more sleep and not have to awaken to another painful experience.
The doctors warned us that we needed to get all the sleep we can early on while he was in the ICU, as we would need it during his recovery. They said the hardest part is yet to come. At the time we couldn't fathom the idea of going through anything harder than watching our son grow weaker and sicker, and having so many moments of uncertainty. As it turns out they were right again. Kade's internal clock is really only tuned into his pain and anguish. We find ourselves shooting out of the couch\bed in his room at the slightest whimper to try to ease the uncomfortable pain. It can take awhile to find the right soothing method to calm him back down. What worked 40 minutes ago usually doesn't work again. So we go through many different methods until we can get his mind off the pain and into a calm state.
Kade's tummy seems to be healing great on the outside, but the Doctors would like to see him eat more on his own. Hopefully, he will soon start taking to the bottle more. We are afraid that he now thinks of the bottle as a sign that more medications are soon to come. Over the last few days it seemed to help him to wash the medications down with the bottle, however we may have created a case of Pavlov's Dog.
Tomorrow Kade will be going through a swallow study. This test will show if his body is telling him when the right time to swallow is. If he is having issues they should be able to see a dye fluid enter his lungs and not his stomach. It's hard to believe that even something so simple can be taken for granted.
We did have a lot of fun moments this weekend together as a family. Hanna loves Kade's new room and has already started to follow the nurses around on this floor as well. She did say that she is going to learn how to work at a hospital so that she can make her brother better. I hope she follows those dreams.
Gods Blessings to all!
The doctors warned us that we needed to get all the sleep we can early on while he was in the ICU, as we would need it during his recovery. They said the hardest part is yet to come. At the time we couldn't fathom the idea of going through anything harder than watching our son grow weaker and sicker, and having so many moments of uncertainty. As it turns out they were right again. Kade's internal clock is really only tuned into his pain and anguish. We find ourselves shooting out of the couch\bed in his room at the slightest whimper to try to ease the uncomfortable pain. It can take awhile to find the right soothing method to calm him back down. What worked 40 minutes ago usually doesn't work again. So we go through many different methods until we can get his mind off the pain and into a calm state.
Kade's tummy seems to be healing great on the outside, but the Doctors would like to see him eat more on his own. Hopefully, he will soon start taking to the bottle more. We are afraid that he now thinks of the bottle as a sign that more medications are soon to come. Over the last few days it seemed to help him to wash the medications down with the bottle, however we may have created a case of Pavlov's Dog.
Tomorrow Kade will be going through a swallow study. This test will show if his body is telling him when the right time to swallow is. If he is having issues they should be able to see a dye fluid enter his lungs and not his stomach. It's hard to believe that even something so simple can be taken for granted.
We did have a lot of fun moments this weekend together as a family. Hanna loves Kade's new room and has already started to follow the nurses around on this floor as well. She did say that she is going to learn how to work at a hospital so that she can make her brother better. I hope she follows those dreams.
Gods Blessings to all!
Well it sounds like you've come along way... yet as you've mention sounds like Mr. Kade got some loops to jump through. It must be very difficult to see him in pain but I really loved seeing that little smile and it brings some peace knowing that little by little your angel is getting stronger and better eachday. You take the doctors advice and really try the best you can to get some serious rest. I know that is much easier said then done. :) I have a little munchin with what appears to be ringworm. Great! Looks like I'll be spending the day defunking sheets in the apartment. I won't know for certain till later this morning that its what Kenna has but never fails, just after having a slumber party. Those parents aren't going to be too happy with me if I have to call them and explain I think Makenna has ringworm. Gross! :) She did have a good birthday and again Thank you for the birthday wishes. You are all in my thoughts and good luck today with the swallowing test. If you have some down time and would like to talk feel free to call anytime. I'll be home today defunking the kids room. :) I like Hanna's dream and also pray that both of your babies dreams all come true!! Hang in there Loseke's you're doing GREAT! May prayer for you today Mr Kade is a good result on your swallow test and a balance in meds for your pain. So good to see those little giggles and smiles even though I know your in pain, those smiles bring some comfort to mommy and daddy so try and smile today and every chance you get little man!!
ReplyDeleteLove and prayers!!
Laura and Kids
I wish you the best of luck with the swallowing test Mr. Kade has today. Also I loved to watch the video of Mr. Kade smiling & giggling at daddy that was really nice to see, I watched it over & over. My prayers are with you all!!
ReplyDeleteMiss Carey
Trying to get oral medicine down kids is NOT fun. My little ones had asthma as children, and the medicines were always yucky! It just tears you up watching the contortions they go through, when they cannot understand that this awful tasting stuff is good for them and will make them feel better! I remember when my mom had to give me a wretched liquid antibiotic called Trisulfaminic. It was a putrid pinkish-orange color and I can still recall the awful taste! I finally became old enough to tell the doctor that I was not going to take that terrible stuff, and could he please prescribe a pill? LOL
ReplyDeleteGreat is thy faithfulness, oh God my Father, there is no shadow of turning with Thee; Thou changest not, Thy compassions, they fail not; As Thou hast been, Thou forever will be.
Pardon for sin and a peace that endureth
Thine own dear presence to cheer and to guide;
Strength for today and bright hope for tomorrow, Blessings all mine, with ten thousand beside!
Amen!