I have to apologize for not posting all weekend! I know that a lot of you check the blog multiple times daily, and I hope that you can forgive me! Kade certainly keeps us busy these days. He is on a pretty good schedule, only napping a couple times a day, and ready to play the when he is awake. We take multiple wagon rides a day, and have been able to enjoy outside a little. Kade loves the wind blowing through his hair.
There is a nice patio off 2nd floor where we have eaten many meals over the last couple of months. It is nice to have Kade join us, even though he is not interested in eating. Tonight while we were out, there was a little boy probably about 3 that was eating an ice cream cone. I asked his Grandparents if Kade could watch him eat it, hoping that Kade would become interested in it. I think Kade was just happy to be out of his room and see someone else besides nurses or us :-)
Kade is still doing great being off of the meds. I did have them give him some Tylenol tonight for teething of all things! He has gotten 3 teeth since we have been here, for a total of 5. It is great to have his system free of the meds, his personality is more like the Kade we know.
Surgery has us on the schedule for Thursday at 1:30 to replace the stoma, remove the Broviac line, and possibly place a G-button, which will eliminate the feeding tube through the nose, allowing us to feed him directly through his stomach while working on getting him to eat orally. If all of the above takes place, that means that Kade will be free of tubes!!! Except for when feeding into his tummy. I can't wait to just pick him up, not worrying if I am "caught" on something. We have been quoted 5 days after surgery to go home, but of course that may change. I will believe it when we are putting Kade in his car seat to leave!
For now we pray that all goes well in the next couple of days leading up to Thursday. Our little fighter still has battles to fight, but they are becoming few and far between. Thank you all for continuing to follow our journey.
Still thinking of your family! Hope all goes well this week and on Thursday!
ReplyDeleteDave, Kim & Trace Egge
Oh that picture is so cute! I laughed when I read your line about not having him hooked up to tubes anymore---I can SO relate. I hope the surgery and the gbutton go well and that Kade can get home soon and continue his amazing recovery.
ReplyDeleteKristin Brown