Saturday Evening (6-13)

"An uneventful day is a blessed day", says Aunt Suzi. We are so thankful for the boring day that we have had today! The surgeons replaced Kade's wound vac and dressing today and he tolerated it well. He has been weened off of one of his many meds to maintain his blood pressure, and has also not needed what they refer to as "maintenance fluid" for the past 18 hours! This good because right now Kade has to much fluid that needs to get out. So much that it has started to fill in his left chest cavity, and on his skull as well. They take X-rays every morning at 4am so they can gauge the progress easily.

To help combat these problems the Dr has placed him on a continuous drip of the diuretic, which seems to be working well. He is peeing, but we need him to go a little more. Kade's hands and feet are having a hard time with all the drugs. In days prior they have changed from pink to purple quite often. Today they stayed mostly pink with slight color changes. Kade has still not moved yet, but they know he will, they just don't know when.

Hanna came to see us today. It took some time for her to warm up to us, but by the end of the day we were back to laughing and reading books and just being silly. It was a great to have that interaction with her. We did talk to her about Kade and that he is very sick. We gave her a tour of the PICU and all the cool things on the walls and ceilings. She was able to talk to Kade's nurse whom won Hanna's heart with some princess stickers. We didn't take her into the Kade's room, but she was able to see all the family pictures on the wall and all the pictures posted up that she made for him. She could see Kade's crib but Kade was covered up with blankets so we couldn't really see him. Which is good because is still not looking like himself and all the tubes and IV lines might scare her.

Sorry for the inconvenience on the comment section I didn't realize that you have to sign up for an account to leave a message until today. I have changed it so that you can leave a message without having to create one. When trying to post choose the Comment as: Anonymous

We also want to send out a HUGE THANK YOU to all of the wonderful kids from Holy Savior's VBS. Pastor Koch came to visit us again today and brought a banner and a big stack of get well cards for Kade. Kade's teachers from Loving Hearts also made a banner for us to display in his room--Thanks to all the great teachers!

Another HUGE THANK YOU to all that have been praying for our sweet boy! We feel that the prayers are reaching him and us as we continue to have our small victories. We still have a long road ahead of us, and are bound to hit some bumps in the road, but for now we will be content with boring days and small victories!!