Allison and I were able to get a great night of rest last night. Kade's stats were looking good and he had the same 2 great nurses from the night before. With our minds at ease we were able to get a room at The Carolyn Scott Rainbow House. A great couple that we got to know while we were here informed us about the house. The house opens it door to families and patients undergoing acute, long-term treatment at Children's Hospital & Medical Center. By the time our heads hit the pillow at 11:00 we were down for the count.
We came back to the hospital feeling refreshed and awake. The night nurses said Kade did well. He also kept up a steady 5 ml an hour output of urine. At rounds today the doctors decided to try to wean Kade down on a few medications. They are going to give the Paralytic medicine a "Holiday" for awhile, allowing Kade to move parts of his body. He is still going to be under sedation and asleep, but it would be great if he could kick me (Troy) square in a face! I so hope he does! They will put him back on it at some point, but its good to give this medication a break. They also will be giving Kade a diaredic to assist him in the urine output. All the doctors said that Kade is doing a little bit better.
The medication for the urine output seems to be working, WOO HOO!! He is outputting about 15ml a hour. Everyone is so happy about that. Keep praying for pee!!
Pastor Scheich was down today, it was great to have him here to talk and pray with us. He was happy to see such a big change in Kade's color from the first day he was here. We have had a lot of great visitors so far and a lot of big shoulders to lean on. We are so blessed to have the ongoing support from everyone.
The biggest thing we hear from the doctors and everyone here is that boring days are great days. These little bodies need time to heal and boring days are great for that. They will be opening Kade again tomorrow to see how things are going on the inside. We pray that they will find things well and healthy, and that we can soon start the closing process on his belly.
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Hello Kade, Troy, and Allison,
ReplyDeleteI finally figured out how to get on the blog and send you a message. What a neat idea to keep people up to date and honor Kade. As we discussed before, it is difficult to keep everyone posted, especially with e-mails and phone calls. The blog helps deal with this. Joan, Carter, and I continue to pray for you and Kade. I was also able to share Kades blog with several of my wifes friends who are prayer warriors. I want and trust you will really start hearing good news for Kade. I feel blessed to have gotten to know your family and your unique trial. Please know you are in our thoughts and prayers.
Sincerely,
Pete and Joan Thiele petethiele@hotmail.com
We are so glad that things are getting better for Kade and gald that you both had some rest... We will get up there soon to see you guys we love ya God Bless.......The Baum Family
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