Friday, August 28, 2009

Friday (8-28)


What a wonderful week it's been. Kade is doing great and just keeps getting stronger. His therapists have been so happy to see how quickly he is gaining his motor skills back. One therapist even mentioned that Kade may break a recovery record if he keeps this up. He has figured out how to roll from his stomach to his back and to his stomach again. This week Kade also was able to get himself into the crawling position and crawl forward a few steps. They are so pleased that he may not have to go everyday, but just 3 times a week.

His stomach is getting stronger as well. Kade now only needs to have the feeding pump hooked up 4 times during the day to do bolus feedings of 6 oz at a time at a hour and a half each. He does need a continuous connection over the night, to get the rest of his daily dietary needs met. He has shown some small interest in taking very tiny tastes of pudding, but he is unable to swallow really anything yet. He usually ends up looking like he was in a food fight by the end of each meal. We are so thankful for the forward progress so far, and know that as he gets stronger and his body grows he will gain the ability the eat back.

Blessings to you and Thanks again for checking in on Kade.

Sunday, August 23, 2009

Sunday (8-23)

We do not have a lot to report with Kade, which is always a GOOD thing! He continues to get stronger, even the therapists are seeing improvements. He still does not eat by mouth, but seems to be a little more interested in food. We continue to put him the highchair when we eat and give him some type of food to "play" with. If he happens to put food to his mouth we are pleased, but we definitely do not want to force the issue. We continue to pray that as he becomes physically stronger the urge to eat will come back. We have been successful with bolus feeds, which allows for a little freedom of the feeding tube being connected 24/7.

We have another full schedule of therapy in the coming week. We do find time to play outside with this wonderful weather we have been having! Wagon rides of course, and swinging in the backyard are Kade's favorite activities.

Hanna is excited to start in the Pre-K room tomorrow, still she will dearly miss her BFF, aka Ms. Cole. These kids grow up way too fast!!

Tuesday, August 18, 2009

Tuesday (8-18)


We have decided to go to Madonna for all of our therapy. We are there every morning, Monday-Friday, doing some type of therapy. Kade is getting stronger everyday! He is certainly holding his own with Hanna, a good chunk of hair in his fist is his main defense! I have busted them wrestling a couple times, Kade just giggles, so I usually let it slide-with supervision of course :-)

I wanted to mention how wonderful both mine and Troy's employers have been with this whole situation. Everyone we work with has been so generous, we cannot thank you all enough. Thank you and God bless!!

Thursday, August 13, 2009

Thursday (8-13)

Sorry we have not posted in a while, we are busy enjoying all of the comforts of home! I know many of you continue to check for updates daily, but no news is good news these days!! It was nice to rest over the weekend, but this week has been full of appointments and a lot of hard work for Mr. Kade.

Monday we saw our pediatrician for Kade's 1 yr/follow appointment. He is right where he needs to be for height and weight. We will be going back next month for another follow up and to get shots. Dr. Russell was nice enough to let us skip shots for now, and we also got out of a finger poke!

The last couple of days have been filled with therapy. Kade is doing very well getting his strength back. He can now go from sitting to tummy and then to his side, and sometimes he makes it to his back. He is reaching and leaning for toys which is a great sign that his trunk muscles are getting stronger. Eating is still a hurdle for us, so we continue to work with him. We pray that as he physically becomes stronger, his eating by mouth will improve.

More in the next couple of days!

Sunday, August 9, 2009

Birthday Weekend


We had a wonderful birthday weekend doing nothing!! The four of us celebrated Kade's birthday with balloons and Elmo cupcakes. Kade did smash the frosting around and squished it between his fingers but was not interested in eating it. We had some presents for him which he and Hanna enjoyed playing with together.

Kade is gaining his strength back more and more each day. He has been able to get himself on his side from both his back and tummy. He also will scoot backwards when on his tummy. It is obvious to us that he remembers how to roll, crawl, and move but he doesn't have the muscles to make it happen...yet! We know that it will only be a matter of time until he is on the go, especially when it comes to keeping up with Hanna, she truly is his best therapy.

This week is going to be full of therapy evaluations, hopefully we will find a good fit for Kade's needs. We had his 1 yr appt scheduled even before he got sick, and it just happens to be tomorrow, so we will get on track with a care plan from his pediatrician. A nurse from Children's Home Health came by today to see how things were going. They will visit again next week.

We did make it to church today and it was nice to see everyone there, both of our Pastors were very excited to see Kade, and us to I suppose :-) It is so great to be home!! Words cannot express how we are feeling! Thank you for your continued prayers.

Friday, August 7, 2009

Friday Night

We made it home safe and sound. Kade has had a lot of smiles on his face ever since he got back into his car seat. Hanna was so happy to see Kade back at home today, and he hasn't stopped watching her and laughing. We truly feel blessed to be home.

Home bound!!!

Its official!!! We are just crossing the river. We'll update more later.